In this issue
- What is dementia?
- What’s the difference between Alzheimer’s Disease and Dementia?
- Programs and Initiatives supporting Primary Care Health
- Support Services for Patients and Caregivers
- Upcoming QI Events
What is dementia?
Dementia isn’t a natural part of aging, as it’s an abnormal degeneration of the brain which causes changes in an individual’s ability to think, speak, socialize and participate in daily activities1. Dementia is a medical term used to describe a set of symptoms affecting brain function that are caused by neurodegenerative and vascular diseases or injuries such as Alzheimer’s disease, vascular dementia, Lewy Body disease, head trauma and more2,3.
Symptoms of dementia can include1,2,3:
- Memory loss
- Difficulty with thinking, problem-solving or language
- Awareness of person, place and time can be impacted
- Loss of understanding and judgement
- Changes in how the individual expresses their emotions
- Changes in personality
- Problems coping with day to day activities
- Problems with socializing
419,000 Canadians of the age 65 years and older are living with a diagnosis of dementia of which almost two thirds are women2. Within Ontario, 111,000 individuals live with dementia of which many reside in the community with complex care needs; this number has increased by 46% between 2009/10 and 2015/164.
What’s the difference between Alzheimer’s Disease and Dementia?

The material was created by Dr. Sabina Brennan of Trinity College Dublin and Trinity Brain Health with financial support from GENIO. © 2017 Trinity Brain Health. Permission to use this material was granted by Trinity Brain Health (trinitybrainhealth.com) which reserves all rights in the material.
Programs and Initiatives supporting Primary Care Health
2 out of 5 Canadian doctors feel well-prepared to manage community dementia care; however, with the growing number of individuals being diagnosed with dementia it’s crucial to be aware of the supports available5.
- A physician, Nurse Practitioner or any IHP can make a referral to First Link, a program designed to help connect individuals newly diagnosed with dementia and their families/caregivers to Alzheimer Society for services and support
- Multispecialty Interprofessional Team (MINT) Memory Clinics offer clinicians training through a standardized nationally accredited training program. There are over 100 MINT Memory Clinics across Ontario – a special congratulations to AFHTO member Centre for Family Medicine FHT’s Dr. Linda Lee who recently received a 2019 Joule Innovation Grant Award that will allow for the MINT clinics to continue to scale up
- The Rural Dementia and Action Research (RaDAR) Team is a research team from three provinces (Saskatchewan, Alberta and Ontario) and the United Kingdom with a goal to improve healthcare delivery to people with people with mild cognitive and dementia and their caregivers in rural and remote communities
- Mount Sinai Hospital has also designed a Dementia Toolkit for Primary Care which includes resources specific to primary care such as assessment and screening tools, medication management, driving safety and much more
- Centre of Effective Practice has created the Use of Antipsychotics in Behavioural and Psychological Symptoms of Dementia (BPSD) Tool
- HQO has previously created Dementia Quality Standard which addresses care for community-dwelling people living with dementia
- A list has been put together by the Alzheimer Society with multiple avenues of professional development in terms of caring for individuals with dementia
- A list of tools to assess pain levels for healthcare professionals have been put together by the Alzheimer society
- eConsult is a secure web-based tool that allows a physician or nurse practitioner timely access to specialist advice, including psychologists, and often eliminates the need for an in-person specialist visit
- SwitchRx is a website that aims to provide healthcare professionals with the most current and useful information to guide their clinical practice when adjusting their patient’s psychotropic treatment regimens
- eHealth centre of excellence community portal always has some tools being released that can be translated into your EMR!
Support Services for Patients and Caregivers
- HQO has developed a Patient Reference Guide with questions patients can ask their caregivers
- Dementia Advocacy and Support Network (DASN) is a worldwide online organization for those diagnosed with dementia working together to improve their quality of life
- There are support groups for families and friends of individuals diagnosed with dementia offered by the Alzheimer Society
- Mount Sinai Hospital has put together a list of caregiver support services available within Ontario
- A range of brochures and publications can be found for both patients and caregivers on the Alzheimer Society website
Upcoming QI Events:
- AFHTO 2019 Conference – Sept 19 & 20, 2019
- OntarioMD EMR Every Step Conference – Sept 26, 2019
- Toronto International Conference on Quality in Primary Care – Nov 16, 2019
- Implementation of Advance Care Planning, Goals of Care and Health Care Consent in Ontario Webinar hosted by HQO – Sept 19, 2019 12:00 – 1:00 pm
- Palliative Care Data Measurement Webinar hosted by HQO – Sept 26, 2019 12:00 pm
References:
- Dementia in Older Adults. https://camh.ca/en/health-info/guides-and-publications/dementia-in-older-adults.
- “What Is Dementia?” Alzheimer Society of Canada, https://alzheimer.ca/en/Home/About-dementia/What-is-dementia.
- Let’s make our health system healthier. “Evidence to Improve Care.” Behavioural Symptoms of Dementia – Health Quality Ontario (HQO), https://www.hqontario.ca/Evidence-to-Improve-Care/Quality-Standards/View-all-Quality-Standards/Behavioural-Symptoms-of-Dementia.
- Spotlight on Dementia Issues | CIHI. https://www.cihi.ca/en/dementia-in-canada/spotlight-on-dementia-issues.
In Case You Missed It: Check out eBulletin #89 or other back issues here!
Questions? Comments? Contact us at improve@afhto.ca.
