By Tara Kiran, MD, MSc, Sam Davie, MSc, Rahim Moineddin, PhD, and Aisha Lofters, MD, PhD; St. Michael’s Academic FHT
Author: sitesuper
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The most effective outreach for patients overdue for cancer screening, according to St. Michael’s Hospital Academic FHT
Background: There is good evidence that cancer-specific patient outreach improves rates of cervical, breast, and colorectal cancer screening. However, it is unclear how primary care practices should implement integrated outreach for all 3 types of cancer screening. They aimed to understand whether integrated outreach using mailed letters or phone calls were more effective at increasing screening uptake in a primary care organization. -
Resources for Patient Engagement
Patient Engagement Surveys Other Ways to Engage Patients Tools from Your Peers Tools from Partner Organizations Measuring What Matters to Patients with Patient Experience Surveys
AFHTO’s measurement initiative, Data to Decisions (D2D), aims to measure quality according to what matters most to patients, according to the Starfield Model of measurement. In 2015, AFHTO and Patients Canada to conducted an online survey, developed with the help of volunteer patients, to determine which indicators of health care quality are most important to patients. Over 200 patients participated. Patients told us that what matters most to them is:
- Involvement in decisions about their care.
- Reasonable wait times for appointments.
- Opportunity to ask questions.
- Providers who spend enough time with them.
- Access to their regular care provider
- Providers who listen to their feelings and concerns.
Teams who contribute data to D2D have the opportunity to share data about how they are doing in terms of these indicators. One of the easiest ways to obtain this data is through a patient experience survey.
- Sample Patient Experience Survey developed by AFHTO and HQO [PDF]
- HQO Patient Experience Survey Guide and Toolkit [PDF]
- Sample Plain-Language Patient Experience Survey from Trent Hills FHT [editable Word document]
Once you’ve completed your patient engagement survey, consider sharing the results with your patients. Check out this example from the Centre for Family Medicine FHT in Kitchener! Looking for something NEW to freshen up your patient experience surveys? Try the Patient Perceptions of Patient-Centredness Questionnaire (PPPC) [PDF]
- The PPPC is a 14-question survey that will let your patients tell you how patient-centered THEY think their care is. Some of the questions are similar to the ones you know from the HQO’s PES, or some of the questions in Data to Decisions – but they dig a little deeper into the relationship between patient and provider, and how that relationship affects the care they receive. It can give you a fresh perspective on the care your team is providing, amplify your patients’ voice, and maybe help relieve some of the “survey fatigue.”
- But what does it all mean? Once your patients have sent back their surveys, check out the Instructions for Scoring the PPPC [PDF] and enter the data in the PPPC Score Calculator [downloads an Excel workbook]. The calculator will automatically turn your patients’ answers into aggregate scores for the following:
- Each of the 14 questions
- Each of the 3 components of patient-centredness
- How thoroughly their illness experience has been explored
- Whether they found common ground with their physician
- Whether they feel understood as a whole person
- Overall patient-centrednesss.
- Wondering where the PPPC might fit in with your existing patient experience survey, how the questions relate to D2D indicators, or what to do with the results once you’ve seen them? Check our our FAQ for answers!
- Consider sharing your results! The more we hear back from teams like yours, the more we can help all teams deliver more patient-centered care. Send your completed calculator worksheet to us at improve@afhto.ca.
Beyond the Survey: Engaging Your Patients in Quality Improvement
HQO’s Insights on Patient Engagement looks at the different ways health care organizations engage their patients. Across the health sector, surveys are the most common way to engage patients: 93% of home care organizations; 79% of interprofessional primary care teams, 74% of long-term care patients, and 66% of hospitals use patient surveys. In addition to surveys, here are some other ways organizations are engaging their patients, and how many interprofessional primary care teams are using them:
- Focus groups, town halls and community meetings: 23% of iteams
- Advisory council or similar: 9% of teams
- Patients on the board: 10% of teams
- Patient advisors on QI committees: 12% of teams
- Patients involved in co-design: 9% of teams
At 10%, interprofessional primary care teams have a small lead when it comes to including patients on their boards. At 23%, interprofessional primary care teams are in the middle of the pack (tied with long-term care) when it comes to engaging patients through focus groups, town halls, and community meetings. Interprofessional primary care teams lag behind when it comes to including patients in other leadership and planning activities.
- 80% of long-term care facilities, 72% of hospitals, and 71% of home care organizations have patient advisory councils.
- 59% of hospitals, 36% of home care organizations, and 23% of long-term care facilities engage patients in developing their QIP.
- 43% of home care organizations, 33% of hospitals, and 14% of long-term care facilities include patient advisors in QI committees.
- 38% of hospitals, 14% of home care organizations, and 14% of long-term care facilities include patients in co-design.

Health Quality Ontario (2018), Insights on Patient Engagement, p. 2. Patient Engagement Tools from Your Peers
Shared Resources from AFHTO member teams
These tools were developed by AFHTO member FHTs and NPLCs to facilitate their own patient engagement efforts; the teams have generously agreed to share them with their fellow AFHTO members. Help build our library by sharing your own patient engagement tools and resources.
- North Renfrew FHT Advisory Committee Terms of Reference [PDF]
- South East Toronto FHT Patient Advisory Council Terms of Reference [PDF]
AFHTO Conference Presentations on Patient Engagement
- Nothing About Me Without Me: Applying Citizen Engagement Methods in a Family Health Team. Presented by Tara Kiran and Sam Davie (St. Michael’s Hospital Academic FHT) at AHFTO 2016.
- Leading by Example: How One Physician’s Commitment to Improving Patient Care with Technology Caused a Ripple Effect of Change. Presented by Joan Chan and Kathleen Vanleeuwen (Guelph FHT) at AFHTO 2016.
- Patient Councils: Experiences within the GTA. Presented by Nancy Gale (Mississauga Halton CCAC) and Sonia Mastroianni (South East Toronto FHT) at AFHTO 2015.
- Engaging the patient in their care. Theme 2 from the AFHTO 2014 Conference, In Partnership with Patients: True Integration of Care. Presentations in this theme include:
- Engaging the Patient through Portals: Tools and Tales
- Using the NHS’s Experience Based Design (EBD) methodology to capture and understand your patient’s experiences and co-design solutions together.
- Timmins Health Link: Practical Applications of Patient Engagement
- Patient Engagement: Progressing from Pamphlets to Partnerships
- Telehomecare: Engaging patients with chronic disease in their care using remote monitoring technology and clinical expertise in the home
- Looking to the Future: Collaboration & Engagement Through Social Media. Presented by Kevin McLeod (Barrie & Community FHT) at AFHTO 2010.
Patient Engagement Tools from Partner Organizations
Patients Canada
Patients Canada has pioneered the practice of bringing the authentic patient voice to health care decision-making, ensuring decisions reflect patient priorities.
- Patient and Caregiver Stories
- Projects and Partnerships that Support Patient Involvement
- Learning Centre: Resources for Patients and Family Caregivers
Health Quality Ontario
Health Quality Ontario (HQO) define patient engagement as “patients, families and health providers actively collaborating to improve Ontario’s health system.” They encourage and help providers to work with patients and families to understand and respond to their needs.
- Framework for Engaging Patients
- Patient Engagement Tools and Resources
- Insights on Patient Engagement from the 2017-18 QIPs
For more information about these tools and resources or other patient engagement best practices, please email Engagement@HQOntario.ca.
The Change Foundation
Patient and caregiver engagement is an ongoing focus for The Change Foundation, an independent health policy think-tank that works to inform positive change in Ontario’s health care system.
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Bits & Pieces: Provincial policy manual including cannabis, antibiotics, collaborative governance, & more
Your Weekly News & Updates
Provincial policy manual for primary care teams and practices
It’s finally here! We have developed a set of standardized policy templates for primary care. These templates can be used by teams across the province or shared with other primary care practices, such as solo physicians and non-team-based clinics.
The manual gives you the flexibility to determine, for your own practice or setting, what policies are required, and whether/how they should be tailored for your unique circumstances. It includes policies such as substance abuse focusing on marijuana, among other substances.
Whether you’re updating your own organizational polices or in the process of developing them, we hope you find this to be a useful aide.
In this Issue:
Provincial policy manual for primary care teams and practices
Using antibiotics wisely
Collaborative governance case studies – how collaborative are you?
Making the case for nutrition screening in team-based primary care to meet the needs of your frail clients
Webinar: Opioid tapering and tools for use in clinical practice
Leadershift applied leadership e-learning series
Upcoming events regarding follow-up in the north and more
Using antibiotics wisely
Using Antibiotics Wisely is a national campaign to help clinicians and patients engage in conversations about unnecessary antibiotic use. Current priorities include addressing overuse in the community, where 92% of antibiotics are prescribed. This year, one area of focus is antibiotics for acute upper respiratory tract infections in primary care.
Choosing Wisely Canada has worked with partners to produce a few resources including posters, evidence-based tools, and patient materials. In addition, there are over 20 Choosing Wisely Canada recommendations that encourage judicious antibiotic use, created by over 15 national specialty societies. Visit their website for clinician and patient resources, in time for Antibiotic Awareness Week (Nov. 12-18, 2018).

Collaborative governance case studies – how collaborative are you?
Collaborative governance is simply multiple boards partnering together to collectively achieve results for shared communities and/or stakeholders, including patients. Read these case studies to learn how two FHTs took a differing approach to collaborative governance, and to learn where your board falls on the spectrum of collaboration.
Making the case for nutrition screening in team-based primary care to meet the needs of your frail clients
Presented by Dr. Heather Keller on Wed., Nov. 21, from 12 p.m. to 1 p.m.
Did you know that ….
- Malnourished patients cost $2000 more per hospital stay and cost an addition 2 billion dollars per year in health care costs?
- Malnourished seniors are three times more likely to fall?
- Malnutrition = fragility?
Primary care is the optimal place for the identification and treatment of malnutrition by team-based care. Nutrition screening in FHTs started in 2016 and now over a hundred teams are screening. This webinar will make the case for nutrition screening as a means of shifting primary care to ‘upstream’ prevention of undernutrition and eventual frailty. Register here.
Webinar: Opioid tapering and tools for use in clinical practice
On Mon., Nov. 19, from 12 p.m. to 1 p.m. join Dr. Andrea Furlan, co-chair of ECHO Ontario Chronic Pain and Opioid Stewardship, to learn about and discuss opioid tapering and tools for use in clinical practice. It offers the following learning objectives:
- Describe barriers and facilitators for a successful opioid taper
- Develop an approach for managing opioid withdrawal
- Remember some tools for use in clinical practice to assist in opioid tapering
Register here.
Leadershift applied leadership e-learning series
LeaderShift is happy to announce the Applied Leadership E-Learning Series, an online series on key leadership topics that will give you practical, actionable insights you can use. The first topic in this series will be “How to Give Better Feedback.”
Learn more today about this interactive online session and how to connect with leaders from across community and primary health care. Seats to participate live are limited. Apply before Fri., Nov. 16! Information is also posted on our website.
NPAO MAiD Conference, Thunder Bay, Nov. 10, 2018
Participate in the MAiD Conference hosted by the NPAO and MOHLTC. Learn more here. More sessions are also being planned in Toronto (Nov. 30) and London and Sudbury (dates TBD).
Altering Challenging Behaviours In Persons With ABI, Nov. 14, 2018
Acquired Brain Injury Behaviour Services at Ontario Neurotrauma Foundation presents this full-day Toronto workshop. You can register here.
Focus on Follow-up, Nov. 27, 2018
A full-day, interprofessional workshop highlighting northern teams and their solutions on how they can help their patients get the right follow-up from the right providers at the right time. Learn more here.
Governance Webcast Series: Board Orientation and Education, Dec. 6, 2018
Learn why board orientation and education is important. Register now!
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Governance Webcast Series: ED Performance Management
The governance attestation requires every board have an executive director performance evaluation process in place. For guidance, a framework has been developed by Accompass to support boards in meeting this requirement. During this webcast, Accompass reviewed the Lead Executive Performance Guide. It includes the role of the board, key principles and best practices in ED performance management. One board chair also spoke to his FHT’s ED performance appraisal process and reviewed their appraisal document. Below are the materials from the webcast:
- Lead Executive Performance Assessment Guide
- Webcast presentation – Accompass
- Example of an Executive Director Performance Appraisal
The recording is here:
Speakers: Jonathan Foster, Vice President, Accompass; Neil Swiggum, Consultant, Accompass; Sean O’Connor, Board Chair, Kirkland and District FHT.
This was part of the “Raising the Bar on Governance – Webcast Series,” which has been developed in response to new governance requirement.
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LeaderShift Applied Leadership E-Learning Series
LeaderShift is thrilled to announce the launch of the Applied Leadership E-Learning Series. This online series will feature short, laser-focused learning on key leadership topics that will give you practical, actionable insights you can use right away. The first topic in this series will be “How to Give Better Feedback.” High-performing teams rely on effective, insightful feedback delivered the right way, at the right times, to keep them at their best. Learn how to optimize feedback, motivate your team and colleagues, and overcome barriers in the upcoming online delivery of “How to Give Better Feedback.” Learn more today about this interactive online session and how to connect with leaders from across community and primary health care. Seats to participate live are limited. Apply before Friday, November 16th! Also, stay tuned to the website over the coming weeks for a key announcement related to an online LEADS LITE Series. It’s coming soon!
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Collaborative Governance Case Studies: How Collaborative Are You?
Collaborative governance is simply multiple boards partnering together to collectively achieve results for shared communities and/or stakeholders.
Read these case studies to learn how two FHTs took a differing approach to collaborative governance, and learn where your board falls on the spectrum of collaboration.
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Provincial Policy Manual for Primary Care Teams and Practices
We are pleased to share the Provincial Policy Manual developed for primary care.
The policy templates can be used by primary care teams across the province or by other primary care practices (solo physicians and non-team based clinics). The manual gives you the flexibility to determine, for your own practice or setting, what policies are required, and whether/how they should be tailored for your unique circumstances. To be effective, policies should be reviewed on a regular basis (e.g. every 2 to 3 years) to ensure that they continue to be compliant with legislation, and to assess whether they are achieving their stated goal.
AFHTO will be updating policies in this manual annually. Although all the policy templates in the manual have been reviewed by legal and HR expertise, users should consult with their own legal counsel for advice pertaining to the use of these policies.
We would like to thank the Partnering for Quality Program for its contribution to the development of this policy manual, with special thanks to Clinton FHT, West Durham FHT and Thames Valley FHT. The Partnering for Quality Program is a regional program in the South West LHIN that aims to improve information management and collaboration between primary care and community health care partners with the ultimate goal of improving chronic disease prevention.
Looking for more Governance and Leadership Tools & Resources? Click here to explore more.
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Data to Decisions eBulletin #81: Sharpening our focus
Halloween is done. Conference 2018 is done. It’s time to get back to demonstrating the value of the work primary care teams do every day! Based on member input, AFHTO’s board chose ‘follow-up after hospitalization” as a priority for improvement across the membership for the coming year. This bulletin highlights activities that might help in that regard. Focus on Follow-Up in the North East: Scared of having your patients fall through the cracks? Join us in Sudbury on November 27th for a full-day, interprofessional workshop for teams (and hospital partners) in the North East LHIN.
- Focus on Follow-Up will help your team make concrete progress in three areas: getting hospitalization information, tracking follow-up in EMRs, and doing the follow-up in a patient-centered way.
- As always, we’ll be highlighting the wisdom of the field, so you’ll hear what’s already working for your peers in the North East, and how you can do it in your team.
- Learn more, or go straight to registration!
Patient Oriented Discharge Summaries (PODS): It’s been a year! It’s time to check in about how well they’re working and why. The PODS research team is sponsoring the upcoming Focus on Follow-up session for AFHTO members (see above). Please help thank them by giving them 3 minutes of your time to complete a post-implementation survey of primary care teams. Sound familiar, but you’re not quite sure? Read on …
- The questionnaire asks whether you’re sharing PODS with patients who go into hospital and/or getting them from patients when they come out of hospital. It also asks whether your team finds PODS helpful when it comes to doing follow-up.
- PODS, introduced in 2017, are a tool that can help your patients get the information they need when they leave hospital. Twenty-seven hospitals across Ontario are giving PODS to patients at discharge.
- Think you’ve seen this survey before? You may have done the original, baseline survey when PODS were first implemented. That survey helped the research team understand the potential value of PODS for primary care. This follow-up survey (see what we did there?) will help the measure the outcome of the intervention.
Use your Schedule A to help track progress with follow-up (among other things): Follow the North Star to make your Schedule A more useful tool. Or consider reviewing the Program Performance Measures Catalogue (PPMC) to find more meaningful and consistent measures for your Schedule A. More consistency shows measurement maturity, further demonstrating the value of teams to the MOHLTC. If you’re not ready to redesign your Schedule A yet, maybe you would consider at least sharing the current version of your Schedule A. This will help us update the catalogue and make it more useful.
- More information on PPMC: Here’s an introduction to the tool and how other teams are using it. And check out the quick reference guide for a cheat-sheet that will help you navigate it. You may also want to consider using program-planning and evaluation tools developed with and for AFHTO members.
Congratulations to everyone who presented at the AFHTO 2018 conference! We’re especially proud to toot the horn of our QI professionals – QIDS Specialists, QIIMS, and other QIDSS-like folks, now collectively known as the Q. Missed their presentations? Check out the links below. You may want to borrow some of their ideas for your own measurement and quality improvement work.
- Improving Quality Together
- Stop banging your head against a wall: how to measure, discuss, and improve timely access to team-based primary care
- Team-Based Transition Management – A Hospital Discharge Follow-Up Process
- The North Star – Leading the Way in Collective Action
- Thinking outside the box: Applying Lean tools in primary care
- When Things Aren’t Adding Up, Start Subtracting! De-Prescribing Sedative-Hypnotics
- Working together: A multi-organizational partnership to support pain management and opioid prescribing in primary care teams
For these slides and more, visit our website here.
In Case You Missed It: Check out eBulletin #80 or other back issues here!
Questions? Comments? Connect with the QIDS team at improve@afhto.ca.