Theme 3. Transforming patients’ and caregivers’ experience and health
Presentation Materials (members only)
Presentation Slides: Patient Councils: Experiences within the GTA
(I) Community Engagement – Mississauga Halton Share CCAC Share Care Council
Learning Objectives
- Define the key elements of a Patient and Caregiver Bill of Rights
- Identify benefit of forming a Share Care Council and how it benefits families and caregivers
- Describe how a patient and family advisory forum provides a direct voice to inform service development and funding priorities
- Learn how to develop strong relationships with families and caregivers in the circle of care
- Identify best practices of a family patient advisory forum – watch a video interview with a Share Care Council member as she explains the importance of having a patient voice in the development of new programs/services.
Summary
Mississauga Halton CCAC established the Share Care Council to give patients and caregivers an authentic engagement forum and direct voice in service development and funding priorities. Mississauga Halton CCAC recognizes the most important partners in caring for patients are patients and their informal caregivers. It recognizes that an inclusive approach to the circle of care will improve quality of care and outcomes. Authentic engagement is not a strategy; it is part of care. The Patient and Caregiver Bill of Rights is an important milestone as Mississauga Halton CCAC and service providers along with patients and caregivers as it articulates how they will work together to attain an exceptional patient experience. Launched in 2014, the Council meets quarterly. Members of the Council proactively identified the need to articulate patients and caregivers priorities to ensure consistent care guidelines. In a truly collaborative approach, the Mississauga Halton CCAC engaged front-line staff and contracted service providers to determine how these priorities could be realized with the intention of creating a single charter for patients, caregiver and care providers across the region. The Council is a patient and caregiver forum that gives them a direct voice to inform service development and funding priorities. This Council strengthens that partnership between Mississauga Halton CCAC and its patients and caregivers. The forum’s name also recognizes the role of primary care and other health service providers, and reflects Mississauga Halton CCAC’s inclusive approach to developing programs and services that deliver an exceptional patient experience.
Presenters
- Nancy Gale, Associate Vice-President, Strategic Communications and Partnership Advancement, Mississauga Halton CCAC
(II) Patients’ Perspectives: Getting Patients Involved and Engaged to Participate in PAC (Patient Advisory Council)
Presentation Materials (members only)
- Materials will be posted following the 2015 Conference.
Learning Objectives
- How to get patients involved in PAC
- Relevant recruiting methods and process to recruit and select patients to be on PAC
- Patients’ experiences with the recruitment and selection process
- What to look for/qualifications in patients that should or want to be on PAC
- Types of patients who get involved/volunteer
- Patient motivations/hot buttons to get them involved
- What patients want to get out of being on PAC
- Benefits/expectations/outcomes/improvements
Summary
- Will discuss how to get patients involved and the recruiting methods and selection process used to establish a PAC
- Patients’ experiences with the recruitment and selection processes
- Key attributes/qualifications to look for in patients that should or want to be on PAC
- Types of patients who get involved and why – Key motivations/hot buttons for patients to get involved in PAC
- Patient Expectations/ Benefits/ Outcomes/ Improvements of being on PAC
- Key impact of presentation: to help FHT’s across Ontario implement a PAC in their centre by providing some patient insights that could help them recruit patients
Presenters
- Sonia Mastroianni, Patient, South East FHT
Authors and Contributors
- South East FHT
- Maureen Gans, M. Ed., Director, Interprofessional Practice & Quality Improvement
- Edwin MacNevin, Patient
- John Lakich, Patient
- Samantha Hartlen, Patient